WHERE DO THE DONATIONS GO?
To support the costs of these #ebawareness journeys, there is a strong year round effort to obtain and receive as much business and company sponsorship as possible. We are reaching out daily around the country to find financial support for our cause, as well as product/gear support to lower our costs. We also use the VERY POPULAR raffle page on this website to set off some of the costs of these journeys. Many families in the EB community also send gift cards as well Walmart gift cards during the journeys, again an effort to offset the costs of bicycling daily across the country. We hold donation spin classes locally, sell T-shirts and other merchandise. We also hold fund raising events at local restaurants.
Anything we can do, to have more funds go debra of America.
Our goal is to someday to give debra of America a total of
1 million dollars!
Please feel free to contact me via phone or text at
518-526-4886 regarding our costs and sponsorship's.
100% of the funds raised will go to Debra of America, located in New York, NY
On behalf of our efforts from The Big Ride for EB.
The Dystrophic Epidermolysis Bullosa Research Association of America (debra of America) is the only U.S. nonprofit providing all-inclusive support to the EB Community, through funding research for a cure and by providing free programs and services for those with: Epidermolysis Bullosa (EB).